Building a support system on Hopin
Founded in 2013, The Cute Syndrome Foundation is an organization that supports families and children who are affected by a rare pediatric disorder called SCN8A. Since 2015, the organization has hosted an annual gathering for families, researchers, and clinicians.
In 2020, however, The Cute Syndrome Foundation had to change its event strategy. Founder Hillary Savoie didn’t want to forgo the beloved community gathering, so she started looking for a virtual solution. After extensive research, she settled on Hopin.
After seeing how easy to use and intuitive Hopin is, Hillary realized the event management platform could have other applications beyond the Foundation’s annual gathering.
"We turned to Hopin to hold that [first] event, but what was really cool for us was that it started to offer all sorts of other opportunities to come together as a community." –Hillary Savoie, Founder, The Cute Syndrome Foundation
Event organizers can easily duplicate and adjust existing events on Hopin, so Hillary quickly built several smaller event series, including one intended to help educate families on how to take part in upcoming SCN8A clinical trials and another that brought families together to share advice and support with one another.